Hi there, Thanks for coming to my My Medical Helps Page. I have had to do alot of research to help myself in My families Illnesses. I have tried to category most of these but i ran into trouble with having too many links and It messed my page up, So I had to put a 2nd Medical helps page here and it has alot of assorted great medical links on it to include how to get your meds for free, So please check it out as well. The link is on the bottom of this page. I will try to give you a Brief Medical History of my Family here. My Husband, Todd had A Rare Auto-Immune Disease called Behcets. I believe he also has Lupus and Chronic Fatigue Syndrome. But they have not been diagnosed yet because our Dr.s do not believe us, We have had alot of trouble with Drs. and we are not the only ones either. I have A rare Disease called Arnold Chiari Malformation , which is a rare congenital abnormaly in which two parts of the brain, the brainstem and the cerebellum, are longer than normal and protrude down into the spinal canal. I also Had a Menigeoma Brain Tumor removed on Feb. 18th, 1999. I have had headaches for 12 years now and was once Mis-diagnosed with Psuedo Tumor Cerebri. I also Have Scholeosis and I have had 5 Knee surgeries to include having my Kneecaps removed. My Left knee is out of alignment and deformed. I also Have Major Deppresive Disorder. My 11 Year old Son Has Ataxia and Bi-polar Mood swings. Both My side of the Family and My Husbands side of the Family Have Diabetes. So In my Quest to better my knowledge I hope I can help you here too. Please feel free to write me anytime. Chris
|
NORD ( rare diseases)